So i Know it’s been AGES!!! No one ever prepared me for my post treatment to be worse the treatment itself, but long story short it was… the summer wasn’t all that awesome… my body loved Decadron something fierce! which is the steroid that they put me on to help with inflammation of my brainstem & such. anywho… it loved it didn’t wanna get off of it… went through all kinds of yucky withdrawal symptoms everytime we got to a certain dose during the taper off of it… and so on it went for weeks and months… New awesome Migraines started also… I started having light sensitivity which was just some new awesomeness all together apparently *raises eyebrow & coughs* i think that’s what they say when they don’t wanna just say yup it’s tha tumor. It got so bad that whenever i got into the light it caused nausea and insta vomiting in the sun light… pretty sexy huh.. then came the migraine… soooo awesome. and exhaustion. I got to spend sometime in the hospital… I knew i needed it at the time, and i think of it now & i have no doubts about it, that’s when everything turned around for me and started to really go up… slowly but surely… I had a breakthrough in October got my appetite back! I was finally able to eat without it feeling forced & such a chore. During my hospital stay and since we started a very very slowwwww steroid taper…. So since the beginning of September I have been slowly weened off about mg of Decadron. It is now Finally January and tomorrow is my last daily dose of a 0.25mg dose of Decadron. Then Thursday morning I’ll take it and do it every other day until next Thursday when my body will hopefully take it well an I will successfully and officially be of the Roids for good! This has just been a LOOOOOONNNGGGG time Coming! and even with all the side effects from being on them for so long, i’m just happy to have been blessed with so many wonderful Doctors, Nurses, Staff, & Families & Friends especially over these months since my official “Treatment” has been completed. Like i said, they made it sound like that was going to be the hard part, but honestly the recovery has been the most difficult part and I am so very thankful for you all. I am so very sorry that it has taken so long for an update. If you ever want to talk or are just curious. seriously, just ask me, if you know me, you know i really don’t care, I’ll answer your questions lol ;) I love you all! thank you for thinking of me! Thank you especially for keeping my Noah in your Prayers!
And my Neuro-Oncologist said as far as the tumor is concerned, (in June, Sept, and Dec) my MRI’s show no grow from what he can see… so game plan is that we will continue to monitor for new signs and symptoms on my end and report back to him if there are any and continue to do an MRI & appt with him every 3 months. And thus is my Life. My Homework is to Exercise my brain by doing crossword puzzles, Sudoku, and read some books. So even though I never enjoyed 2 out of 3 of those things before Radiation to my brain (crossword puzzles & Sudoku) I sure am going to try.
Well this sure has turned into a novel. I’ll update if anything awesome happens! :) Thank ya’ll!
My sister shared this with me… I love it :) And I needed it.
Alabama Shakes - Hold On (Official Video) (by Alabama Shakes)
It’s my 3 month Brain,brain, brain, brain brain, brain scan time with my Super Neuro Oncologist (@ Kirklin Clinic) http://4sq.com/15Sg2wr
This is my first prepared meal I’ve done on my own since before I began treatments!
Today’s the day… Time for my MRI & my Neuro Oncologist this AM. Praying that all my scans look exactly the same! Goal is no Growth! http://4sq.com/18O4AoA
Is spent fishing with the Family in the boondocks over Memorial Day Weekend
Hanging out for the fun stuff ;-) (@ Clearview Cancer Institute) http://4sq.com/10IG1DO
ROUGH. I mean I’d take another week of treatment over this Lol…
All joking aside, I’ve been more nauseated & ill all round being off steroids & having the latent effects of treatment hit me…
And let’s just say that there is a war still happening in my stomach… And I’m losing. Hopefully when I see the doc tomorrow he’ll give me some magic nausea med that I haven’t tried. I mean I’m on the patch y’all and i’m poppin Zofran like an addict… little relief… but my stomach’s still banging like a mad man.
I just wanna eat y’all. Lol ;)
keep my stomach in your prayers!
Needed this :)